Welcome!

Craniosynostosis is a condition whereby the sutures in an infant's skull have closed prematurely. Since brain growth is compromised, many complications can arise. The condition needs to be treated with surgery, and the child needs to be monitored for related problems. Since both Simon and I were born with this condition and had surgery, I have devoted these links to our journey. I hope that the information here helps someone else in their journey through cranio.

Cindy

 

Donations

We are currently struggling to pay the travel and medical bills that have come up with Simon's various tests, surgeries, and now hearing aids. If you would like to contribute to our expenses, please e-mail me. I will send you the information of what offices are requiring payments at this time. Thank you.

 

Journal

Read about our journey on the cranio rollercoaster.

 

Photo Album

See our journey on the cranio rollercoaster.

 

Useful Resources

Use these links to help you in your research. Feel free to contact us with any suggestions of resources to add.

 

"The Divine Kiss"

Read an inspired story about a cranio kid.